Parkinson's Disease Nurse Specialist
Service Changes for COVID-19
Due to circumstances surrounding COVID-19, the way we deliver care in the Community Parkinson’s Service has changed. All patients under the care of the service have been, or are being, contacted by telephone as part of a Welfare Call Scheme.
Patients that have been identified via the Welfare Call Scheme that require an expert opinion are telephoned by the Parkinson’s disease clinical nurse specialist, who will then either signpost the patient to the appropriate agency, department or GP, or contact the consultant physician for advice (with the patient’s GP informed of the outcome).
If you have any urgent queries relating to the Community Parkinson Service, please contact:
01443 443092
Email: CTMParkinsonsNursingService@Wales.nhs.uk
For the Princess of Wales Hospital Community Parkinson Service, please contact: Louise Ebenezer, Clinical Nurse Specialist, on 01656 752047.
The Parkinson’s Disease Nurse Specialist Service is an assessment and follow-up service for patients who have been diagnosed with parkinsonism. Patients can be referred by either their GP, consultant or any other health care professional, such as a physiotherapist.
This assessment and follow-up service is for people who have been diagnosed with one of the following:
- Idiopathic Parkinson’s disease
- Progressive supranuclear palsy
- Multiple system atrophy
- Corticobasal degeneration
- Lewy body dementia
- Other categories of parkinsonism
This is a nurse-led service working closely with GPs, consultant physicians, and other members of the multi-disciplinary team.
Who Is It for?
The Parkinson’s Disease Nurse Specialist Service provides a specialist nursing service for people with Parkinson’s.
This service is available for the residents of Rhondda Cynon Taf and Merthyr Tydfil.
Can Anyone Use the Service?
Use of this service is by referral only and all referrals are assessed to ensure that they are suitable.
Opening Times
Monday – Friday, 9am – 5pm
What to Expect
The Parkinson’s Disease Nurse Specialist Service provides:
- A comprehensive assessment of need with a clinical nurse specialist.
- Advice and support for patients, families and carers.
- Referrals, where necessary, to other healthcare professionals that can help you.
- Specialised support and training to GP practises, community staff and other health care professionals involved in your care.
Contact Us
The Parkinson’s Disease Nurse Specialist Service can be contacted at:
- Dewi Sant Health Park telephone: 01443 443092 *
- Email: CTMParkinsonsNursingService@Wales.nhs.uk
*Please note you may need to leave a message on the answer phone system. A member of the team will get back to you as soon as they can. Please ensure you leave your name, number and reason for phoning.
Any emergency should be immediately directed to your GP, your GP’s ‘out of hours’ service, or by dialing 999.
Useful Links
- Parkinson’s UK (Email: hello@parkinsons.org.uk) (Telephone Helpline: 0808 800 0303)
- Progressive Supranuclear Palsy Association (PSPA) (Email: psp@pspassociation.org.uk) (Telephone Helpline: 0300 0110 122)
- Multiple System Atrophy (MSA) Trust (Email: support@msatrust.org.uk) (Telephone Helpline: 0333 323 4591)